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This web-based toolkit has been designed by PPTA in consultation with the Plasma Protein Users Group (PPUG) as a means to support PPUG members to facilitate the development of national patient groups.
The aim of the Patient Group Toolkit (PGT) is to provide a set up framework, guidance and useful information that can be shared with start up patient groups in different countries.
The materials which can be found on this website will therefore be of assistance to patients looking to:
o Set up a new national patient group
o Consider the basic legalities for setting up a group
o Draft a strategic plan
o Finance and fundraise
o Attract sponsors
o Build membership
o Make a case study
o Learn about reimbursement
o Increase visibility through communication tools such as
o website
o newsletters
o Collect data successfully
o Develop government advocacy/lobbying skills
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